Feb 16th, 2008 by woodstone
It feels like things are finally getting back to normal here. R is doing great, no more headaches, back, or neck pain… her shoulder is healing quickly (she can use the arm a little with no problems although if she overdoes it, it gets sore again) and her face is also healing well… she’s looking more like herself again.
Incredibly, we’ve pretty much kept to the daily schedule I started a couple of weeks ago. Getting M to accept those changes in routine was so tough that I wasn’t willing to let him slip back into old habits and then have to start all over again with the schedule. So I modified it a bit for R (very easy school days during the early part of the week!) but kept the same general routine. I think it’s a good schedule, and it seems to help M to have the extra structure built into the day. Unfortunately, he’s still really difficult in the late afternoon… R seems to enjoy the “reading time” right before dinner, but M has been edgy and uncooperative. I’m not sure what I’m going to do… force the issue, or tweak things a little.
We’re still working on changing M’s meds. I can’t tell you how tired I am of it. Unfortunately, we’re only a couple of months into a 7 month long process. We’re adjusting two medications each week, and I’m having to keep close track of his vital signs (his blood pressure could take a sudden drop, and his heart rate is already too fast) and keep up with the blood draws (reminder to self… draw blood today, you’re two days late!). But the hard part is he’s so unpredictable right now… I never quite know what I’m going to be dealing with each day. Luckily we have been able to replace a full 25% of the haldol so far… so I think it looks good for probably being able to stop it completely at some point.
We went to a wonderful party for our Special Olympics team a couple of weeks ago (yeah, I’m a little behind). It was at the Wings Over the Rockies Air and Space Museum and we had so much fun! Our team had the whole museum to ourselves, several great restaurants catered dinner, they had a photographer there taking family pictures, and after dinner the DJ cranked up the music for some dancing! It was such a fun evening… Here are a few pics:
R really looks good ! She must have an efficient healing system. Looks like you had a great time at the Air Space Museum - just great.
I recognize three of the four people in the last picture…but who is that old man??? LOL. I almost didn’t recognize J.